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Working with Fibromyalgia (fi-bro-my-Al-juh)

Lee Dugdale • May 12, 2021

As part of mental health awareness week and 12th of May being Fibromyalgia awareness day, I wanted to share a personal story of how Fibromyalgia has affected me and the way I work.


What is Fibromyalgia?


Fibromyalgia is a lifelong invisible disorder that affects the whole central nervous system. It changes the way the central nervous system (brain, spinal cord, and nerves) processes messages carried around the body. The most common symptoms are widespread pain, fatigue, and cognitive problems (often called fibro fog). There are several other conditions often associated with fibromyalgia such as osteoarthritis and lupus.


I was diagnosed with fibromyalgia 4 years ago after many trips to the doctors and finally a push from a concerned osteopath. I had been suffering with chronic pain in my arms and hips for months.


Fibromyalgia has many symptoms which vary from person to person. It’s common for the condition to have flare-ups, making your symptoms suddenly worse. I am still learning what my triggers are for a flare up, but I have noticed changes in the weather, hormonal changes and additional stress have a huge impact.


After my diagnosis I tried to educate myself as I must admit I was in denial for a long time. I was convinced it must be another ailment or even more than one. I was lucky to have a patient doctor who agreed to send me for tests and listened to my other suspicions of what alternative illness I could have. My family also got dragged along this journey with me. They helped me when I was too fatigued to walk up the stairs and listened to me when I was convinced I could have MS or early onset dementia.


Crippling brain fog is one of the symptoms that can be the hardest to adjust too. It is not just a case of forgetting what you came into a room for- it is more like not having the ability to join up thoughts. I can see an apple; I know it’s an apple but when I try and say it’s an apple the thoughts are not there.

Working with this condition 


So how has this affected me and my work at 1-fix? Firstly, I am very lucky to have Craig and Sarah as my bosses. They have created a trusted work environment where I can be honest about what is happening to me and they reassure me that they still see me as a valuable member of the team. They also help me in making sure I can still carry out my role, even on days where my symptoms are bad.


Part of my symptoms are IBS and anxiety. I have always been a very confident person, and when I found these symptoms popping up out of the blue it really knocked me back. I found face to face meetings were becoming difficult, and so the increase in Teams meetings over the last year has helped me massively.  


I struggle to control my body temperature, so I have been able to move my desk next to the radiator in the office. I also have a heater and a blanket too if I needed it.


I also am very sensitive to sound and smells. I use noise cancelling headphones if I am struggling with the sounds of the office or at home where I am currently working. This helps sooth my central nervous system and helps to stop a flare up from coming. 


When I moved to full time hours, Craig agreed for me to do my weekly hours on a flexitime basis. This means if I need to have a longer lunch to rest if I am struggling, I can make the time up at the end of the day etc. 


On days when my fibro fog is bad, I have a list of not-so-complex tasks that I can work through. On these days I try to take my time and not be so hard on myself. I am lucky that my colleagues are very patient with me and as we have worked together for a long time, they can understand what I am trying to say when I can’t string the sentences together. They often notice when I am not doing too well even before I do.


Moving forward with fibromyalgia


I used to feel embarrassed and ashamed of my fibromyalgia, but I have found the more I share it with people and the symptoms, the more people understand. I feel able to accept that it is just part of who I am now.



I manage my symptoms without prescribed medication after receiving pain management treatment and attending the NHS Fibromyalgia support group where I learnt many tools and tips. I also took the responsibility of looking after myself more by eating healthier, losing the lockdown weight, and starting to exercise more. I was always looking for a cure or a quick fix, but now I am making positive changes that have helped my symptoms. I am now accepting that I will have bad days but working extra hard on the good days.


If you would like any more information about Fibromyalgia please visit the websites below;

https://www.nhs.uk/conditions/fibromyalgia/

https://www.sruk.co.uk/conditions/fibromyalgia/

https://www.fmauk.org/information-packs-mainmenu-58

https://ukfibromyalgia.com/

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